Caregiver Resources

Advice for caregivers at home

If you are a caregiver of a person living with dementia, you will have questions. Though everyone’s situation is unique, St. John’s has many of the answers that may help you along the way.

Throughout this website, you will find caregivers similar to yourself who will tell you about their experience. They will also talk about strategies for keeping their loved one engaged, finding joy for themselves and their loved one, and how to recognize and deal with change. You will also find useful links to other resources, including our blog, where you will find articles of interest to caregivers at home.

Resource Category
A new diagnosis of Alzheimer's disease or another dementia-related disorder brings with it a great deal of emotion and much uncertainty about the future.
You may experience your loved one physically move, whether that be on foot, in a wheelchair, or (depending of their abilities) in a vehicle, with no intended destination.
As dementia progresses you will need a care plan for the sake of your loved one and for your own physical and mental health.
As dementia progresses, communicating with a person living with dementia can become more challenging because s/he may have trouble finding the right words, may lose the thread of the conversation, and may have emotions about which s/he is unable to speak.
Bathing can be the hardest part of personal care for your loved one living with dementia. As the dementia advances, bathing can become even more challenging, so it is good to know and keep in mind your loved one’s bathing preferences, before dementia was an issue.
There are an estimated 35 million people with dementia across the world, of whom 50% experience regular pain.1 In early stages of dementia, your loved one will experience pain just as s/he has through life.
These days a phone call or a video meeting may be the best way to check in with your loved one’s physician—for a routine checkup or a non-life-threatening condition.