Why caregivers at home?
As a caregiver, you are dedicated to the well-being of your loved one. But as a caregiver in a home setting you may not have easy access to the information you need to provide the care your loved one deserves.
Enter St. John’s Dementia Resource Center!
St. John’s online Dementia Resource Center is brand new. It is a “tool box” for at home dementia caregivers to find answers to questions that come up on a daily basis. Answers to these questions should guide you to a better understanding of your loved one. The Dementia Resource Center is a website that provides helpful information on a variety of dementia issues—like behavioral changes you do not recognize or when you notice that a loved one is unusually stressed or upset. Sometimes there are environmental or family issues that have an impact on you as a caregiver.
We are just getting started
As time goes on, we plan also to address more practical issues, like how to arrange respite care, how to keep your loved one entertained as (s)he goes through the day, how to deal with sundowning, how to talk about the death of a family member, and much more!
Why St. John’s? Aren’t there plenty of other dementia resources?
There are many other dementia information resources. This one is special. It is locally based. It is practical rather than theoretical. It is also brought to you by a provider of dementia care services. And it will be changing with the times. As we learn lessons from experience, will pass them on to you here.
At St. John’s, because of our long history of dementia care and skilled nursing care in Rochester, we have a unique perspective on the subject. We are not only experts, we are local practical experts with decades of learning and understanding on which to rely. On this website, you will find articles, blog posts, videos, and other content with our own brand of wisdom tempered with experience to help you get through the day (and night). You will recognize some of our caregivers as they appear in videos, author blog content, or provide insight into the answers to questions we hear every day.
About the St. John’s Joy Plan
We believe that all people living with dementia (or otherwise) deserve some joy. However, we also know that even with the best intentions, it is easy to let a day go by without it. We need to plan for it, so we have created a guide for caregivers at home to build joy into their loved ones’ care. We call it a Joy Plan and we would be happy to send you a copy of the worksheet so you can make it a part of your care plan. Opportunities for joy are everywhere if you know where to look!
Not just information—useful tips, worksheets, products, and services also
Based on some of the tools we use at St. John’s to structure care for dementia patients, we have created online versions to share with you. You will find a template you can send for that will help you build JOY into your daily care routine. You will find checklists of important tasks to help with many of the issues that dementia caregivers face, like how to prepare for a telehealth visit or how to deal with sundowning.
Finally, when you reach a point when it is time to consider a caring alternative with the 24/7 monitoring that the most severe stages of dementia require, St. John’s can help you work through that difficult decision.
Welcome to St. John’s online Dementia Resource Center
We hope you find it valuable. Please let us know what you think! We hope you will visit us often as we continue to add new content. If you have anything you would like us to address immediately, note the Chatbot on the bottom right of this page. Leave us your email and just Ask Mimi to help. We look forward to hearing from you.