Experienced caregivers

Advice for caregivers at home

If you have been caring for a loved one living with dementia for some time, you will have different questions from one just starting the journey. Although every person’s situation is unique, St. John’s has the practical experience to provide a perspective that can be useful to you.

Throughout this website, you will find caregivers we have interviewed who will tell you about their experiences. They also talk about their strategies for keeping their loved ones engaged, ways they have been able to find joy for themselves and their loved ones, and how to recognize and deal with change, the one constant as the dementia journey progresses. You will also find links to other resources, including our blog, which includes articles of interest to caregivers at home.

Licensed clinical social worker Sybil Prince explains why dementia care of a loved one is particularly stressful—because the person is physically present, but his/her personality is dramatically changing, resulting in a sense of loss for the caregiver.

Resource Category
According to Addie M. Abushousheh, a gerontologist, researcher, and consultant for organizational and environmental development in long-term care, as people age they become more dependent on their environment to compensate for increasing frailty and sensory loss.
Are you a caretaker of a person with dementia and need supplemental income to cover the costs of caregiving? If so, you may have considered picking up a part-time job.
According to the Alzheimer’s Association 2022 Facts and Figures report, in 2022, the total national cost of caring for people living with alzheimer’s disease and other dementias is projected to reach $321 billion.
Traveling with a loved one who has Alzheimer's disease or another form of dementia can seem daunting; especially if new environments, unfamiliar surroundings, or changes to daily routine, have already been a challenge for your family member.