Welcome to
St. John's Online Dementia Resource Center

If you are a caregiver for a loved one living with dementia, this website is for you. You will find information and resources on virtually every aspect of your world, whether you are just beginning to provide care at home or you are a more experienced caregiver. Explore the site and let us know what you think! Contact us at any time to let us know how we can help you along this challenging journey.

I am

new to caregiving at home

I have

been providing home care for some time

Caregivers: Send for your Joy Plan.

St. John’s believes every person living with dementia deserves some joy every day. As an at home caregiver, you also need to plan moments of joy for yourself. St. John’s has developed planning tools for caregivers to use at home, so you can be sure to build in the joy every day. Read about our Joy Plan. Send for your free copy of the St. John’s Joy Plan.

The Latest Blog Posts

The Caregiving Benefits of Holiday Baking

With the holiday season comes family gatherings, time-honored traditions, and usually, lots of baking. While many holiday activities may seem unobtainable as a caregiver for a loved one living with dementia, there are ways to adapt to the new reality.

I’ve just learned that my older sister, who has dementia, has been moved into a nursing home. She lives in another state. I don’t travel any more, but would like to be in touch with her. In the past we’ve talked on the phone, but now I’m not sure what to say to her, or how it will affect her. I’m not sure what she remembers these days, and I don’t want to say anything to upset her. I would appreciate suggestions on how to support her from afar.

It’s so difficult to be far away from loved ones when they aren’t well. Because you’re not sure how much her dementia has progressed, is there any other family member, or person at the nursing home that you can talk to?

The Link Between Type 2 Diabetes and Dementia

Type 2 diabetes, or adult-onset diabetes, is a chronic disease that impacts about 34 million Americans. If left untreated or unproperly managed, a person can develop heart and kidney disease, blindness, damage to blood vessels and nerves, or an increased risk of dementia.
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Frequently Asked Questions

Definition of Dementia:
Dementia is a catch-all term for a number of abnormal brain disorders with symptoms that can interfere with daily life: memory loss, forgetting words, difficulty solving problems or making decisions, and attitude/behavior changes.

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It can be challenging, because s/he may have trouble finding the right words, may lose the thread of the conversation, and may have emotions s/he is unable to tell you about.

Tips to make it easier: It helps to have a personal connection—at eye level, with eye contact.  Speak slowly and calmly.

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Take care of yourself, and we know you’ll take better care of your loved one. At St. John’s, we understand the joys and the stress of providing care for persons living with dementia. Some days are amazing, others are difficult. And for you, at home, it can be even more challenging without the resources we have at St. John’s—backup, experts to talk to, colleagues to cheer us on and cheer us up.

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Marilyn & Lauren's Story

Even though people had told me what to expect, eventually it was still really difficult to accept the fact that my mother’s memory was slipping way.

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Rochester, NY 14620

585-760-1300

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150 Highland Avenue | Rochester, NY 14620-3099 | 585-760-1300

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