Experienced caregivers

Advice for caregivers at home

If you have been caring for a loved one living with dementia for some time, you will have different questions from one just starting the journey. Although every person’s situation is unique, St. John’s has the practical experience to provide a perspective that can be useful to you.

Throughout this website, you will find caregivers we have interviewed who will tell you about their experiences. They also talk about their strategies for keeping their loved ones engaged, ways they have been able to find joy for themselves and their loved ones, and how to recognize and deal with change, the one constant as the dementia journey progresses. You will also find links to other resources, including our blog, which includes articles of interest to caregivers at home.

Licensed clinical social worker Sybil Prince explains why dementia care of a loved one is particularly stressful—because the person is physically present, but his/her personality is dramatically changing, resulting in a sense of loss for the caregiver.

Resource Category
St. John’s is working on some new online training that is relevant to home caregivers of persons living with dementia. If you would like an email when this online training becomes available, contact us.
When you talk to other caregivers of persons with dementia, the importance of support always comes up. Pre-COVID, our groups were live and on campus, but now and for the foreseeable future our caregiver support groups are all online or via the phone.
If you are caring for a loved one with dementia, you know it requires you to be the best you can be.