Physical

Advice for caregivers at home

If you are a caregiver of a person living with dementia, you will have questions. Though everyone’s situation is unique, St. John’s has many of the answers that may help you along the way.

Throughout this website, you will find caregivers similar to yourself who will tell you about their experience. They will also talk about strategies for keeping their loved one engaged, finding joy for themselves and their loved one, and how to recognize and deal with change. You will also find useful links to other resources, including our blog, where you will find articles of interest to caregivers at home.

Sybil Prince, Licensed Clinical Social Worker, advises caregivers at home on the need for support—from family, friends, and the professional community—and from other caregivers.

Experience Level
There are an estimated 35 million people with dementia across the world, of whom 50% experience regular pain.1 In early stages of dementia, your loved one will experience pain just as s/he has through life.
These days a phone call or a video meeting may be the best way to check in with your loved one’s physician—for a routine checkup or a non-life-threatening condition.
As dementia progresses, eating and drinking for a person living with dementia can still be a source of joy, or a health issue, or more likely, both.  Every person’s eating and drinking history and preferences are different.
As age and dementia progress, sleep problems can become more prevalent. Be on the alert for changes in sleep patterns that result from shifts in your loved one's brain. You may notice your loved one is restless, may shout out in his/her sleep, or may wander.
Many elders can be hard of hearing due to the normal process of aging, but persons living with dementia can experience sound in different ways due to their dementia.
Bathing can be the hardest part of personal care for your loved one living with dementia. Because bathing is so personal, your loved one may not be comfortable with any kind of assistance.
As you care for your loved one be on the alert for changes in his/her sleep patterns. These can indicate many things, ranging from health issues requiring a physician’s attention to a need for medication to assist in the sleep process.
There are an estimated 35 million people with dementia across the world, of whom 50% experience regular pain.
Many elders can be hard of hearing due to the normal process of aging, but persons living with dementia can experience sound in different ways due to their dementia.