Physical

Advice for caregivers at home

If you are a caregiver of a person living with dementia, you will have questions. Though everyone’s situation is unique, St. John’s has many of the answers that may help you along the way.

Throughout this website, you will find caregivers similar to yourself who will tell you about their experience. They will also talk about strategies for keeping their loved one engaged, finding joy for themselves and their loved one, and how to recognize and deal with change. You will also find useful links to other resources, including our blog, where you will find articles of interest to caregivers at home.

Sybil Prince, Licensed Clinical Social Worker, advises caregivers at home on the need for support—from family, friends, and the professional community—and from other caregivers.

Experience Level
According to Addie M. Abushousheh, a gerontologist, researcher, and consultant for organizational and environmental development in long-term care, as people age they become more dependent on their environment to compensate for increasing frailty and sensory loss.
According to the Alzheimer’s Association 2022 Facts and Figures report, in 2022, the total national cost of caring for people living with alzheimer’s disease and other dementias is projected to reach $321 billion.
You may experience your loved one physically move, whether that be on foot, in a wheelchair, or (depending of their abilities) in a vehicle, with no intended destination.
As dementia progresses you will need a care plan for the sake of your loved one and for your own physical and mental health.
As dementia progresses, communicating with a person living with dementia can become more challenging because s/he may have trouble finding the right words, may lose the thread of the conversation, and may have emotions about which s/he is unable to speak.
Bathing can be the hardest part of personal care for your loved one living with dementia. As the dementia advances, bathing can become even more challenging, so it is good to know and keep in mind your loved one’s bathing preferences, before dementia was an issue.