When your loved one lives with dementia, the possibility of an unexpected hospital visit is always present. Emergencies can be overwhelming, but with preparation, you can make the experience less stressful for both you and your loved one. This article provides a practical checklist of what to pack, how to communicate with emergency room (ER) staff about dementia, and how to advocate effectively during high-stress situations.
What to Pack in an Emergency Bag
Keeping a ready-to-go hospital bag can save valuable time. Consider including:
- Essential documents:
- Current medication list and dosages
- Insurance cards and identification
- Power of attorney or health care proxy papers
- A one-page summary of your loved one’s dementia diagnosis, stage, and key behaviors
- Comfort items:
- Familiar blanket, pillow, or sweater to ease anxiety
- Photos or small personal items that feel grounding
- Practical items:
- Extra eyeglasses, hearing aids, dentures (and cases)
- A notebook and pen for taking notes
- Phone charger and a list of emergency contacts
- For you, the caregiver:
- Snacks and a water bottle
- A light sweater or jacket
- A small self-care item (like hand lotion or mints) to help during long waits
Informing ER Staff About Dementia
Emergency staff may not always be aware of dementia-specific needs. Clear communication helps:
- Introduce yourself as the caregiver and advocate right away.
- Provide the one-page dementia summary you packed, noting:
- Memory or communication difficulties
- Behaviors that may occur under stress (wandering, agitation, refusal of care)
- What calms your loved one (music, touch, familiar phrases)
- Remind staff to speak directly and slowly to your loved one, using simple language.
By setting this context early, you can help avoid unnecessary confusion or frustration during exams or treatment.
How to Advocate in High-Stress Situations
Even with preparation, hospital visits can feel chaotic. Here are strategies to stay centered and effective:
- Stay calm and patient: Your tone influences how your loved one responds.
- Repeat information as needed: ER staff may change frequently during a shift.
- Ask questions without hesitation: Clarify tests, medications, or wait times.
- Protect your loved one’s dignity: Request privacy when possible, and remind staff of preferences.
- Take breaks: Step outside briefly if safe to do so; caring for yourself helps you stay strong.
Remember, you are your loved one’s voice in a busy medical system. Your advocacy makes a meaningful difference in ensuring compassionate, appropriate care.
Preparing for the unexpected may feel daunting, but having a plan in place can transform an overwhelming emergency into a more manageable experience. A ready hospital bag, a clear communication strategy, and the confidence to advocate all help safeguard your loved one’s wellbeing.
Download our free checklist to have handy in case of emergencies. Remember to keep a bag by the door or in your car so you are always prepared for the unexpected.
